Making the Invisible, Visible
The experience of living with interstitial lung disease (ILD) and managing the treatment will differ for each of your patients. It’s helpful to gain an understanding of their experience as it will help determine how you provide care for each patient. Watch the following videos below to discover how you can further support your ILD patients by understanding how they view their disease, the current management of it and their quality of life.
What constitutes meaningful quality of life from the perspective of a patient with advanced IPF?
Every patient will have a different idea of what it means for them to live a quality life with idiopathic pulmonary fibrosis (IPF). This video explores how clinicians and patients differ about what they think constitutes a meaningful quality of life (QoL). Understanding these gaps could help you to consider what management techniques can support your patient's quality of life.
Which factors influence treatment adherence in patients with chronic conditions like progressive pulmonary fibrosis?
A lack of adherence to medication isn’t always a choice for patients who suffer from chronic conditions like progressive pulmonary fibrosis (PPF).1 Some patients may be able to regularly take their medication despite the challenges faced. However, there are many who will stop taking medication due to issues like side effects and forgetfulness.1 Watch this video to gain more insight on patient adherence.
How often should ILD patients be proactively monitored to support early detection of progressive pulmonary fibrosis?
Patients with ILD should be monitored regularly for progressive pulmonary fibrosis (PPF) in ILD.2 However, patients may want to be tested more frequently. This is usually due to low survival time after PPF identification.3 Watch this video for further insight on how patients may feel about regular monitoring.
Do newly diagnosed ILD patients with pulmonary fibrosis retain the information they are given, in order to make decisions?
Remembering a lot of information in one go can be challenging for patients, especially if they’ve just been diagnosed with a life-threatening disease.4 It may be hard to explain the complexities of ILD. This video reveals the patient experience of processing information at diagnosis.
Abbreviations
ILD - Interstitial Lung Disease; IPF - Idiopathic Pulmonary Fibrosis; PPF - Progressive Pulmonary Fibrosis; QoL - Quality of Life.
- Ibrahim KM, et al. Pharmacy 2021;9:31. https://doi.org/10.3390/pharmacy9010031.
- Chowaniec M, et al. Interstitial lung disease in systemic sclerosis: challenges in early diagnosis and management. Reumatologia. 2018;56(4):249–254.
- Cottin V, et al. Presentation, diagnosis and clinical course of the spectrum of progressive-fibrosing interstitial lung diseases. Eur Respir Rev. 2018;27(150):180076.
- Maher TM, et al. Identifying Barriers to Idiopathic Pulmonary Fibrosis Treatment: A Survey of Patient and Physician Views. Respiration. 2018;96(6):514-524. doi: 10.1159/000490667. Epub 2018 Aug 16.